|Cool water and a Mom-shade on the last day of PIP, May 31, 2012. (Kendall School)|
During my last visit (with Orion and Tasia on 5/29/12) at National Institutes of Health's National Eye Institute in Bethesda, MD, I received some fascinating information. A couple genetic tests have come back with definitive results. We're waiting for the rest of the family's blood to be drawn and checked to complete the genetic picture behind Orion.
Now, I am very curious, here. Since it's said that Orion's the first of his kind, I want to be certain of that. I'm wondering if there's a d/Deaf person out there, with amazing white hair at birth or at a young age, very poor vision and not an albino. (Or if they've been mislabeled as albino...) If there is, has he/she been checked out for a certain gene? I have seen such a man in a glance a long time ago but know none personally to inquire.